I have sever Restless Leg Syndrome, Periodic Limb Movement Disorder and also Sleep Apnea and Idiopathic Hypersomnia. I see the specialist giving their point of view and sometimes I see an alturnate point of view. I am creating this Blog to encourage people to express both sides of each issue in a positive manor. I would like to see positive results from each point of view and have a few issued that I would like to discuss. I also encourage you to add any items you would like input on. I believe strongly that an open Group discussion will give a better result than any one person on their own.
I was diagnosed with Restless Leg Syndrome ( in both arms and legs ) and Periodic Limb Movement Disorder ( I jerk every 30 seconds )in about 1998. I started on Synamet CR until it stopped working. Jan 2003 I reached 3mg Pergolide and had a COMPLETE cure. I woke up wide awake and did complex programming until 10:30pm. But Augmentation occurred and by December 2004 I stopped programming at 8pm. I switched to Amantidine which did no work. 2008 I started using Requip. When I increased from 5 to 6 tablets a day it got worse. I woke up about 4am and could not return to sleep. I then tried Pergolide again as sometimes this will work again for a while but not in my case. Assuming that more than 1.5mg a day can cause Augmentation I changed to 1 mg Pergolide and 1.25 tablets of Synamet CR. I also take 2 Panadine with this at 9pm and at bed time 1 panadine and 2 DHC ( I can not take codine directly as it hypes me up ). I also take Magnesium Citrate in the morning ( a muscle relaxant ). If I miss the bedtime panadine and DHC I may as well not go to work the next day as I will not do anything useful.
I went to a sleep clinic Feb 2010 and was diagnosed with Sleep Apnea and Idiopathic_Hypersomnia. I am aroused about 44 times per hour with 26 due to Sleep Apnea and 18 due to Idiopathic_Hypersomnia. They did not do both legs and did not confirm if PLMs caused these arousles. I will normally wake up 1 to 3 am and agin at 3 to 4:50 am and get up at 5:30am 7 days a week. I now also take 1.25mg Pergolide at 12pm and a 20 minute nap.
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